View yourself as fortunate in case you’re carrying on with a flourishing sound existence with almost no infirmities to stress over. Since there exist various individuals out there who experience the ill effects of the heart, brain or body and wish they had an existence like yours.
Take Lucy Parke’s life for example. This cheerful eight-year-old passed away recently in the wake of torment from Hutchinson Gilford Progeria Syndrome, that she was determined to have soon after her introduction to the world.
Thanks to everyone in our church family who has prayed for Lucy. You may have heard that the Lord took her home on January 1st. Please continue to pray for her mum and dad, Stephanie and David, her siblings, Jake, Jenny and Ben, her grandparents William and Ethel, Harold and Clare, and the whole family. Attached is a little video clip of Lucy in better days. Thank you all again.
Posted by 3rd Portglenone Presbyterian Church on Wednesday, January 3, 2018
For the accidental, Hutchinson Gilford Progeria Syndrome, generally known as Progeria, is a particularly uncommon condition that influences one in each four million individuals. The condition makes the patient age rashly.
It is evaluated that exclusive 134 kids crosswise over 46 nations live with the condition that is caused by a change in the lamin-A quality. One manifestation of the condition involves extreme solidifying of the supply routes at an exceptionally youthful age. Different manifestations contain body and fat misfortune, male pattern baldness and moderate, hindered development alongside a normal future of 13 years.
A life worth remembering
Lucy, from Ballyward, Co Down, Ireland passed away in the midst of family and companions on New Year’s day and was covered in a little pink box with her dad as one of the pallbearers.
Web-based social networking was overwhelmed with tributes from all edges of the world who recollected the young lady and her family in their petitions.
One among them was writer Catherine Campbell, who had talked with Stephanie for her book When We Can’t, God Can who expressed how a few people had been supported and favored by Lucy’s essence.
“She was beautiful in every way, but had the premature aging condition Progeria, and fought bravely against the effects it had on her tiny body these past eight years,” she wrote on Facebook. “Lucy is now free from pain and limitation, but please pray for her wonderful family who is devastated by her passing. I am so blessed to have met this amazing little girl, and feel Stephanie and David’s pain very keenly today,” she wrote further.
Lucy was conceived on November 10, 2009, yet scarcely in the wake of turning four months old, she needed to experience a hip operation and she likewise experienced compressions of her knees and lower legs. With a poor craving, she wasn’t putting on much weight and soon after she turned nine months, she was determined to have Progeria.
Notwithstanding her physiological weaknesses, Lucy was a cherubic young lady, who like some other three-year-old, jumped at the chance to sing and play with other kids. Yet, dissimilar to other kids, she experienced hindered development alongside joint inflammation and heart issues that added to her shorter future.
I opened FB to wish all of who visit this page a very Happy New Year, but before I got that far I read of the death of…
Stephanie Parke, Lucy’s mother told The Down Recorder: “We have been to two reunions in England, October 2011, and Italy, December 2012, with the European Family Circle and we are going to one in England in August for six days. It’s a good opportunity for Lucy to meet other children like her and have the same limitations. She is very shy but when she gets to play with other children she comes out of herself.”
The Lucy Parke Progeria Fund was begun not long after Lucy’s determination in 2010 with a specific end goal to store up monetary help for her treatment as companions, neighbors, and outsiders needed to help in the way they could.
“We are very grateful to everyone who has helped her financially and in prayer over the years. At the minute there is no type of treatment, but the Progeria Foundation is trying to find a cure. Because there are so few children in the world there is limited research able to be done,” Stephanie explained.
Lucy would go to customary doctor’s facility registration and was carrying on with the life of an enough solid youngster before her condition exacerbated. In any case, David (Lucy’s dad) and Stephanie were in contact with specialists from Progeria Research Foundation in America and France to get some answers concerning conceivable medications that could have helped Lucy carry on with a more extended life.
In any case, without any result.
It never is simple for a parent to witness their youngster shrink away gradually directly before their eyes and for Stephanie and David, the circumstance was much rougher. Yet, not the kind to surrender so soon, both trusted that Lucy went to their life for an awesome reason.
Lucy Parke was an ‘amazing’ little girl, who has ‘left a lasting impact on the world’, mourners heard at her funeral….
“Lucy was sent to us for a reason and we thank God for her daily. She has enlightened our family and we have grown closer to God and stronger in our faith because of her. She has changed our lives and will continue to impact the lives of so many others in Northern Ireland and throughout the world,” Stephanie explained.
According to Belfast Live, the family issued a statement which said: “We have lost our precious Lucy. Her body was weak but her heart was strong. Her love for life and wonderful smile made us proud to be her parents.”
We remember Lucy and her family in our prayers.